Vulvodynia ?? What's that ?? Vulvodynia/Vestibulitis is pain or discomfort of the female genitalia or surrounding area. Complaints may be of pain, burning, stinging, irritation, itching, inflammation or rawness. The discomfort can be constant or intermittant. Some women will only have pain when pressure is applied to the area surrounding the entrance of the vagina or the vestibule area, some have pain all the time.
Vulvodynia is being associated with a systemic connective tissue disorder. Women may have numerous areas of connective tissue involvment, such as interstitual cystitis, irritable bowel syndrome, fibromyalgia, problems with memory and other disorders.
Listed below you will find some helpful resources and links collected through listed foundations, email groups and internet surfing ~ there are alot of great sites out there. If this disorder is something you feel you may have these resources hopefully will be helpful to you & your physician in selecting a treatment plan that works for you - be patient it takes time for somethings to work or to find the treatment plan that will work for you.
| Vulvar Pain Foundation
For a nominal tax free fee you will receive educational
information in newsletters, discounts to videotapes/seminars and to the Low Oxalate Cookbook.
Opportunities to participate in research studies and surveys. They will connect you with a
volunteer in your area that you call for questions and support. |
| National Vulvodynia Association
For a nominal tax free fee you will receive quarterly newsletters full of education, support, helpful
tips. Ability to participate in research studies and surverys, receive discounts on current
seminars as well as on informationf from previous seminars. They also connect ou with a
volunteer in your area that you ma call for questions and support. |
| Vulvodynia.Com
Site by Dr Paul Glazer who is a Clinical Psychologist
in New York City with a professional practice limited to the use of surface electromyographic
feedback in the treatment of pelvic floor muscle dysfunctions and vulvovaginal pain syndromes.
This site offers live chat with other suffers, you can email Dr Glazer, offers upto date
education, announcment of seminars, offers to other services and products. Also a list of
physicians speicializing in vulvodynia |
| Sex Without Pain
You don't have to live with painful sex. Proper diagnosis and
multidisciplinary treatment can help you reduce or eliminate pain. |
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Women's Health Matters More great
information and support and has a detailed diagram of the female anatomy. |
| Vulvodynia by Dr
Donnica Moore Offers very good informationon Vulvodynia as well as other women's health
issues. |
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| Rowan's Resources Great information
listing personal resources on practicle tips, prescription & supplemental medications,
links & much more. |
| More good links from both these sites: Vulvodynia Links Page & Yahoo Vulvodynia Directory |
| OneList:Vulvar Disorders |
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